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UID:69e2db021a062
DTSTAMP:20260418T011442
DTSTART:20230228T170000Z
DTEND:20230228T210000Z
LOCATION:Amphitheater\,  Ronald Reagan Building and International Trade Center  1300 Pennsylvania Ave NW\,  Washington\,  DC 20004
SUMMARY:RARE DISEASE WEEK ON CAPITOL HILL
DESCRIPTION: Be a part of this multi-day event hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases)\,  that brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting[..]
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