Be a part of this multi-day event hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases), that brings together rare disease advocates from across the country to make their voices heard by their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate for policy changes directly to their Members of Congress.

No matter one’s connection to rare disease or their advocacy experience level, all are welcome.

Registration for Rare Disease on Capitol Hill 2023 will open on January 4th, 2023.