february, 2025

24feb - 26feb 248:00 amfeb 26Rare Disease Week on Capitol Hill 2025

Event Details

Join rare disease advocates from across the country for this impactful multi-day event, hosted by the Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases. This gathering empowers participants with the knowledge and tools to advocate for meaningful policy changes affecting the rare disease community.

Time

24 (Monday) 8:00 am - 26 (Wednesday) 5:00 pm

Location

Amphitheater, Ronald Reagan Building and International Trade Center

1300 Pennsylvania Ave NW, Washington, DC 20004

Organizer

EveryLife Foundation for Rare Diseases

Ronald Reagan Building and International Trade Center
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